So as with any person who is sick, Breeze didn't feel like eating or drinking. To most this is not ok to do, but it is a lot worse for PKU folk. When her body had a fever it burned itself, burned protein. Making her levels go up.
So for the first week I was taking care of a feverish, sick baby, trying to keep her hydrated and not think to much about the fact that her levels were going up, she was not drinking all her formula nor was she eating. It was rough. But she never did stop eating or drinking so that's good, and a lot of time she wanted water. Which, I know is great, but for Breeze her formula is better. But I am glad she drank it and she got it as much as she wanted.
Once her fever broke I was focused on getting her levels back in check. I think the second week was harder than the first!
The second week of healing I experienced a two year old dose of what high phe levels look like. Yikes! I will say this, this week, Breeze is a little angel, yep, I said it. My 2 year old is an angel.
It was hard to get her to drink her formula. ( I even gave her one of Raven's bottles,once just once) So our lovely dietician advised us to try putting tang in her formula. It's phe free. So as of four days ago, Breeze drinks all her orange milk, happily. She gets a choice, which I think helps. 'White or orange milk?' I'm also going to get her some mios which are also phe free to give her more of a selection.
What do you do to help your kids immune system?
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