Life's a Breeze: 2015

Sunday, October 11, 2015

Unanswered Prayers

It's hard to believe that this girl is 4! When we first found out Breeze had PKU, the dreams of the future became clouded with fear and uncertainty.This unknown 'scary' thing indeed rocked my world, some hard, but now, looking back thus far, I can see it has filled our life with more blessings than hardships.

I am so,so, thankful.

I have an amazing support team at The Children's Hospital, that has given me amazing opportunities just in this year alone! I've gone to an all women's camp, rode my bike over mountain passes and now to a low protein cooking class in Napa valley. As a Mom I've learned we all have our struggles, all we can do is our best with what God has given us, and support each other through it.

Breeze and I have new friends!

I have met amazing PKU moms who live minutes from me! (Which really is such a blessing) and Breeze has fellow PKU friends.

She can learn from this disease

I hope for Breeze to learn that PKU is not something that defines her or holds her back in life. But sees it as a a spring board to embrace all life has, because, it is in fact a gift. I hope she learns to use it as an opportunity to give empathy and compassion to those around her. We all have struggles in life, it is how we use those struggles that makes all the differences.

I can learn and teach(hopefully!)from this disease

I am blessed beyond measures all the time by something that is a struggle. I hope as I Mom I can teach my children many things, but one thing for sure. Always thanking God for the many blessings in life, but probably mostly, for the unanswered prayers.

About Us

We are the happy family of three plus two dogs. Adam and I have been married going on eight years! Hard to believe. We decided to wait to have children, we played hard and enjoyed our dogs. So when we finally got around to try to have kids we had some difficulty, but finally with a little help, last year we had a daughter, Breeze Marie Porter. She has been the most wonderful addition to our lives. There is no other word to describe her but delightful. She has been a good baby since day one. I think that my step sister Kelly summed it up nicely when she said that "God give the happiest babies to those who will have other difficulties to deal with".

Our difficulty came to us in the second week of Breeze's life. We found out she has PKU. So in addition to adjusting to being new parents we also had to learn about this rare genetic disorder that we gave our child. I had to use the pump I had no intentions of using unless I had a night out with the girls and I had to learn about the millions of bottles and nipples out there that had no resemblance of my boob what so ever. The hardest part was I had to take Breeze off my breast and give her a bottle, with hopes she would come back. Needless to say that week was hell. Thank goodness for grandparents and we had two sets here. We all had Bottle Use 101 in our kitchen and learned a few things the hard way. Like do not open all the packages of different bottles at once and expect to get them back together, just throw away and start over. Do not boil the nipples for too long, they will not work properly. Do not trust your bottle warmer, it will make the milk wayyyyy to hot. I'm still trying to find the humor in the remark about my resemblance to a milking cow while double pumping(thank goodness for the pumping bra!) But all you can do when life throws you a curve ball is have a good cry, or maybe a few, throw a temporary pity party, have a drink, or maybe a few and get on with it. There is nothing in life that is going to keep this family down.

Note to self- If today sucks, there is always tomorrow.

Sunday, October 11, 2015

Unanswered Prayers

Sites I have found useful