Thursday, January 23, 2014

No time for a 'Bottle'

Alright well it's been about a week since we have thrown away the bottle, literally Breeze threw it in the trash,and I think we have finally made it over the hump. 

    Last bottle ever!!!


This past week has been a struggle, I'm not gonna lie. I am glad I threw the remainder of the bottles in the trash as well because I am not quite sure I would have made it.

But I think that we have crossed over and I am so happy. I know it's so important for her to drink her formula, but on days that she was really refusing  to drink and eat I got so upset. Upset, that she has PKU, upset that I had to give her this liquid that is more important than food. There where moments I just got so frustrated I didn't know what to do. I realized on day two that with holding food until she drank was not the way to go. 
Breeze 1, Mom, 0. 

So then I started to feed her, meaning she ate food then I gave her her 'big girl cup' and slowly she started to drink, the less I stressed the more she wouldn't fight it. Have I ever said being a Mom is the hardest thing I've ever done? Well it is. I thank God everyday for my girls and for the patience to be the best Mom I can be. It's frickin hard.


This was a particular bad night. 
This is what was left at the end of the night


Saturday, January 18, 2014

Party Time

Today we went to a birthday party for one of Breeze's best friends. Parties can be difficult for pkuers so I was hoping to bring along some lo protein food that was similar to what was being served. I asked the Momma and my challenge was crescent roll wrapped baked hotdogs and Mickey Mouse cupcakes. Food available that she could have was fruit, veggie straws and veggies! 

I decided to try a vegan recipe for the hot dog. It was a marinated carrot wrapped and baked in some lo protein bread dough. My bread dough recipe is from Cook for Love and it is delicious! I always have some bread dough in the fridge for easy access. For the cup cakes I used a bought mix (maddies) from the low protein food store at the hospital( a large storage closet with food on some shelves) for the ears, k- too gluten free Oreo type cookie from whole foods and a store bought frosting that is phe free.

She ate some of the 'hotdog' as well as the other things available. The cupcake looked super cute and I think she ate part of an ear and some frosting. ( Hers is the vanilla one) Regardless of what she ate I feel this party was a success!

Thursday, January 16, 2014

Happy New Year

This year I am really going to try and become an official 'blogger'. To me that means write more, post more and I think I will be changing this blog a little. I think that it is nice to read and see what other moms are doing to help their children grow and become active participates in this world we live in. I am trying my best and would like to share the success and failures that I have had while on this journey of parenthood, it just so happens my kid also has PKU so that might be interesting to some other PKU moms as well!

Having two children has been, so far, a little easier than expected. Raven is still pretty immobile so that is likely to change. I have really enjoyed watching Raven grow up with a sibling. The instant love for a siblings is amazing, I think Breeze trumps me at times.

 I am always on the hunt for fun new things to try with Breeze. For example this week we went bowling for the first time and she loved it! We will definitely be trying it again soon! One struggle we are having is being nice and all that in tales. Today Breeze decided to push, A LOT! We had to leave a gymnastics class because of it. I think she is all about getting a response from anyone. We also are taking the bottle away, today is DAY 2! Today she did not finish all her formula and she hardly ate. So needless to say this was a stressful day for Mom. But alas there is a good drink, bedtimes and always, always tomorrow. Good night world!